Truth be told, it can be tough to know whom to turn to when chronic disease gets to be too much, physically and emotionally.
My husband is the greatest, but even he has his limits when it comes to understanding what I experience on a daily basis and why I need to be scrupulously careful even when I am doing well. For that reason, I have a diverse support network. Some of my other resources include friends with other autoimmune diseases (see prior post about Laura Rellihan), my mentor at National Psoriasis Foundation One To One and members of disease-related groups on Facebook. That said, City Girl must give huge props this month to her husband, who has been wonderful while she has been (and continues to be) under the weather. He has been insisting that I rest, even when I think I can do more, keeping after me about staying in touch with my physicians and being all-around sweet doing favors and keeping up things around the apartment when I cannot. If things get to be too much and you feel your family and friends do not understand, consider getting a Mentor or joining a few groups. There are lots of folks who understand what you are dealing with. We are here for you.