There's a reason why we have the saying, "Hindsight is 20/20". Today, WEGO Health has challenged e-health activists to write about the one thing we wish we had known at the beginning of our patient journeys that would have made it easier and less scary.
You know, being a patient is like anything else in life. Some things you have to learn on your own. But, there is one thing I wish I had known, and that is:
I wish I had known there was a vast community of Psoriatic Arthritis patients,
e-health activists and autoimmunity bloggers, worldwide!
As a fellow blogger, I rely on the support of these folks. I read about what they go through, how they are feeling, hear about their struggles at work, in social settings and at home with their families. I read about what helps them nutritionally, in the gym, everywhere. Just by reading their posts, they comfort me and inspire me!
As a newly diagnosed patient, I was petrified! On the one hand, I was relieved I did not have Lupus. On the other, I thought life as I knew it was over. If I had read the bold posts on BeingMeInMyOwnSkin by Alisha Bridges, I would have been less afraid. If I had read the matter of fact posts on JustAGirlWithSpots by Joni, I would have seen that psoriasis can never eclipse one's beauty. If I had read the energetic and positive posts of It'sJustABadDayNotABadLife by Julie Cerrone, I would have felt empowered! If I had followed HurtBlogger on Twitter, I would have realized that the pain of autoimmune arthritis can be handled with grace. And, these are just a few.
But, I cannot go back to the past and being a newly diagnosed patient. I can only move forward and do all I can to make other patients comfortable, show them there is no need to panic and encourage them to keep going, and be here when they feel no one else is.
Search #HAWMC on Twitter to read what other e-health activists Wish They Would Have Known. Until tomorrow.