Welcome back! I'm sorry I've been away so long, but I can explain. First, I've been super busy with National Psoriatic Arthritis Day, World Psoriasis Day, the American College of Rheumatology in Washington, DC, many additional doctor appointments for office visits and tests, communicating with the folks at WEGOHealth about my selection as a Finalist for the 2016 #HAAwards (thanks to YOU!) and last, but not least, preparing to go out on disability and relocate South for the Winter. WHAAAT??!!
The winner in my category will be announced Monday, December 5, 2016. Stay tuned!
First things first. I hope you've been keeping up with PsAndMe.com. I've been writing for them and attended the American College of Rheumatology with them. It was great to finally meet my team in person and do Facebook Live interviews with a prominent rheumatologist and other patient advocates. In case you missed these updates, you can search #Rheumers on Twitter & Instagram & check out PsAndMe on Facebook.
I had a great time meeting for a blogger summit and NYSkin pop up shop with some of my fellow Psoriasis bloggers and pose for photos of my skin with noted British photographer, Rankin, on World Psoriasis Day. Here is my shot:
Honestly, the main reason I've not been posting in a while is a marked reduction in my ability to concentrate. I have not yet pinpointed the cause, but these are the list of suspects:
high blood pressure brought on by prolonged Prednisone use;
new drugs to lower my blood pressure;
new drugs to increase circulation & eliminate edema;
run of the mill brain fog associated with Psoriatic Arthritis; and
stress of transitioning to disability & relocating for the Winter.
You may remember in this post when we discovered my BP was too high. Since then, I had an abnormal stress test, but passed my coronary angiogram with flying colors. It appears my BP problem is not to blame on any heart disease or blockages. Yippee!
Over the past two years I have experienced rapid decline in my mobility, which is backed up by recent x-rays & MRIs, evincing additional joint & tendon degeneration. This, coupled with my high BP & need for heart testing, were the main reasons I have decided to transition to disability.
So, It seems keeping a regular schedule is not doing me as much good as I initially thought. Perhaps age is a factor. I am almost five years older than I was at diagnosis. I hate to have to assemble a new medical team, but am confident I will find the right practitioners. I will finally have time to begin physical therapy and am hoping this will help with my mobility. More on our relocation, later.